Livskvalitet hos personer med Amyotrofisk lateralskleros (ALS) - En litteraturstudie

by Englund, Sandra; Mårtensson, Thèrése

Abstract (Summary)
The purpose of this study was to describe how people with Amyotrophic lateral sclerosis (ALS) experience their quality of life. The method used was a study of literature with design description. A various combination of search words, such as “amyotrophic lateral sclerosis”, “ALS”, “quality of life” and “people” were used in searching the computer bases Medline (Pubmed) and Science Direct. In total, thirteen scientific articles were analysed and quality tested, subsequently they were categorized into four categories: physical, mental, social and existential quality of life. Research into the physical aspects surrounding the quality of life showed that it is, above all, the disparaging functional capabilities and restrictions related to the illness which causes the mental suffering. In time, the patients interests changed from active to passive. In contrast to this, the experience of mental suffering was very low. Results of the studies into the social aspects showed that the patients relationship with family and friends was of the greatest value to quality of life, as well as the foremost support towards conquering the difficulties which the illness causes. The patients religious beliefs and access to a priest, play a significant part regarding the conquering of existential questions and thoughts.
Bibliographical Information:


School:Högskolan i Gävle

School Location:Sweden

Source Type:Master's Thesis

Keywords:amyotrophic lateral sclerosis als quality of life people


Date of Publication:10/14/2008

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