Family care to child bearer of brain paralysis in the first threeyears of age.
The central question of the present study appeared due to the personal and professional experience of the researcher herself. While researching the topic of care to child bearer ofbrain paralysis, answers were sought for the central question: How does the family take care of a child bearer of brain paralysis in the first three years of age of the child? In order to find answers for this question, the study aimed at knowing how the family takes care of the child bearer of brain paralysis in the first three years of age. Concerning the goals, the following plans were outlined: the announcement of the health situation of the child was not made according to the family necessities; the lack of understanding of the health situation of the child makes the care provided by the family more difficult; the families lack support from the health teams; the children bearers of special necessities, due to brain paralysis, do not receive the proper care by the family according to their necessities, because the family was notinformed on how to proceed, in a systematic and contextualized way, during the stay at the hospital; the families do not know the rights of the child; the child bearer of special necessities, due to brain paralysis, does not have specific actions of health services available, in order to assure the necessary support to his / her weaknesses. The theoretical referential which supported the research involved: Family ? first universe of social relations of the child; involving the family in the pregnancy period; birth and risk factors for the brain paralysis; the process of adaptation faced by the family: when the newborn does not fulfill the expected baby; the process of educating /taking care of the family in order to enable it to provide the care for the child bearer of brain paralysis. The theoretical referential built came up to coherent and consistent concerning the data analysis and interpretation. In the methodological terms, an exploratory-descriptive qualitative approach was used with the six families of children bearers of brain paralysis, who were born between 2005 and 2007, with APGAR lower or equal to three in the fifth minute, in the city of Rio Grande. For the data collection, a method of semi-structured interview was used with these social subjects. With the data analysis, three categories emerged: reflecting on the development of connection; the process of adaptation of being family; the exercise of citizenship ? the health as a right. Among the results it was observed that the process of taking care of the child begins previous to the pregnancy period, being influenced by the culture of the child?s ancestors. This culture was seen as an influence to determine the defense mechanisms that each member of the family used during their adaptation process. The main support network, highlighted by the study subjects was the family as a whole. The difficulties found by the families were highlighted concerning the principles of integrality and accessibility to the health services and actionsbesides noticing a gap concerning the ideal assistance provided by the basic attention and the reality to which these children and families are exposed to. It was concluded that the fact of now knowing the child?s rights, as well as exercise of citizenship of this population could also be noticed and such facts interfered in the power of this population to decide and measure their own existence, which made these families passive subjects, who live according to the rules imposed by a normative and oppressive society.
Advisor:Vera Lúcia de Oliveira Gomes; Hedi Crecencia Heckler de Siqueira; Maria Elisabeth Carvalho Cestari; Marisa Monticelli
School:Fundação Universidade Federal do Rio Grande
Source Type:Master's Thesis
Keywords:child bearer of deficiency
Date of Publication:09/04/2008